Simply b Photos » The Big Blue Bus Tour

Dennis and Lori

I had the incredible opportunity to travel to Orlando last week to take pictures of this wonderful family. They were visiting from Hawaii as part of their son Jacob’s wish being granted through the Make-a-Wish Foundation. Jacob was diagnosed at 9 months old with Spinal Muscular Atrophy (SMA).

Here’s what a friend told me about Jacob: This disease over time has caused Jacob to be incapable of living the life of other 4 year olds. Jacob spends most of his time in his feeding chair sitting upright, watching TV or playing with Thomas the Train or Disney action figures. Jacob even has a difficult time even holding his head up. What muscles he does have are so tight that his legs can not even be straightened out. This year has been pretty rough on Jacob and his family, he has had numerous long term stays in the PICU, the most recent for a G-Tube surgery so he can increase his nutrients and vitamin intake. Jacob is by far the strongest person I know. Jacob never fails to smile or make those around him laugh!

Lori and Dennis meet life and the challenges they have with love and patience. Not only does Jacob have SMA and is currently outliving his prognosis, but their daughter was recently diagnosed with autism.¬†They are incredible parents with a beautiful family and I feel blessed to have met them, especially when Lori told me that they hadn’t done family pictures since Jacob was 9 months old! I’m so thankful to have been able to capture some precious moments for them during their time in Orlando! Here’s a quick peek at a few…

August 6, 2012 - 7:08 pm

Lori - Oh Amy! I just stopped by your website to check out the link to your photography class when I stumbled upon this blog post!!! The pictures are absolutely BEAUTIFUL and your kind words made me tear up! Thank you for spreading SMA awareness and for painting my family in such a lovely light.

August 6, 2012 - 7:17 pm

Ashley - YAY!!!!! Amy again you delivered another set of amazing photos! I can’t thank you enough for doing this for my friend!:)

August 7, 2012 - 5:59 am

Manessah McClatchie - Amy.. The best! Thank you for sharing these photos! Beautiful! Made me tear. Love you girl!

August 8, 2012 - 12:11 pm

Nittaya Butierries - Thank you so much Amy for sharing the pictures they are so beautiful.

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